Category: Health News

  • U.S. could face “tripledemic” amid exodus of health care workers

    U.S. could face “tripledemic” amid exodus of health care workers

    The U.S. could pretty effectively facial area what has been dubbed a “tripledemic” this winter, with cases of COVID-19, the flu and a virus called respiratory syncytial virus (RSV) surging at the same time. 

    Instances of RSV are soaring rapidly in youthful small children, who ordinarily deal the virus by the time they are a few, but who were shielded from it and other viruses for the duration of lockdown intervals. 

    “Pediatric ICUs around the country, a lot of elements of it, are complete,” said CBS Information clinical contributor Dr. David Agus. Most hospitalizations now are connected to influenza and RSV, not COVID-19, he included.  

    The simultaneous improve in scenarios of three unique viruses comes as extra experts are leaving the health and fitness care subject for operate that possibly pays improved or is less bodily and emotionally draining, which could even more threaten the nation’s strained wellbeing care procedure.

    “I’m anxious that hospitals, wellbeing care vendors are heading to be overcome,” claimed CBS News clinical contributor and Kaiser Wellness Information editor-at-massive Dr. Celine Gounder. “We’re hunting at pretty superior costs of both of those flu and RSV, so likely anything close to like 35,000 hospitalizations for each week just from those people two circumstances.”

    Of system, COVID-19 is continue to all around, as well. “Are we heading to be prepared, are we going to have the beds? I’m definitely involved about that,” Gounder said. 

    Unmanned medical center beds

    A vaccine is now out there for RSV, a prevalent respiratory virus that will cause chilly-like indicators but which can be significant in infants and more mature grownups, according to the Facilities for Disease Control and Avoidance. 

    Currently, a spike in RSV scenarios amid extremely younger youngsters has confused pediatric hospitals. Minor young children are specially inclined to building critical signs because their immune devices are undeveloped and their airways are scaled-down than all those of grown ups, making it tougher to breathe when inflamed. 

    The wellness treatment method is also grappling with a lowered labor pressure subsequent an exodus of health treatment staff from the field in the course of the pandemic, largely owing to burnout. That indicates that even far more perform falls on the laps of the nurses, medical doctors and administrative and support staff members who keep on being in the marketplace. 

    Some 330,000 clinical gurus dropped out of the labor power in 2021 according to health care commercial intelligence business Definitive Health care. 

    “It truly is an even extra difficult condition, [with] even extra understaffing, so then even more people get burned out and go away,” Gounder reported.


    Overall health care workers see increase in actual physical, verbal assaults from COVID patients

    02:13

    Looking for superior stability

    Some of the physicians, nurse practitioners, medical doctor assistants and other providers remaining their work to retire early, though others made the decision to look for out administrative perform and cease seeing sufferers.

    “So it truly is all various forms of approaches of decreasing that burnout of getting a improved function-existence balance which, frankly, more than the very last pair of many years, it really is been seriously tough on people today,” Gounder mentioned. 

    Gounder claimed she’s presently seeing the effects of limited workers on clients seeking care at Bellevue Medical center in New York Town.

    “Patients are sitting in the emergency place for a working day or two waiting around for a mattress, due to the fact it is not just about obtaining the physical bed — you require to have the medical professionals, the nurses, the other workers to person that mattress,” she mentioned. 

    “The full process is actually clogged up correct now,” she included. 

    Employees across numerous fields still left jobs in look for of better wages and doing work conditions in the course of the so-identified as “Fantastic Resignation.”

    There is certainly no obvious-minimize resolution or obvious way to entice additional specialists again to the clinical area, and though greater wages would not hurt, superior pay alone will not repair the concern, according to Gounder. 

    “I imagine folks are valuing their time in a complete distinct way now, and I do imagine it would need truly rethinking the business enterprise product of wellbeing treatment, seriously transforming how we framework health care, how we provide it, who presents it,” she explained. “I’m somewhat skeptical that we are likely to make these adjustments.” 

  • 12 Stories You Need to See

    12 Stories You Need to See

    A roundup of the week’s most newsworthy overall health field press releases from PR Newswire

    NEW YORK, Oct. 28, 2022 /PRNewswire/ — With 1000’s of push releases printed just about every 7 days, it can be hard to retain up with every little thing on PR Newswire. To support journalists covering the healthcare market continue to be on top of the week’s most newsworthy and well known releases, this is a roundup of stories from the 7 days that should not be skipped.

    The list below involves the headline (with a url to the total text) and an excerpt from each and every story. Click on on the push launch headlines to access accompanying multimedia belongings that are readily available for down load.

    1. Initially Lady Dr. Jill Biden Joins the American Most cancers Society to Launch Roundtables on Breast and Cervical Cancer in the Next Stage Towards Most cancers Moonshot
      The roundtables provide with each other a diverse coalition of national organizations and advocates to prioritize equitable access to the avoidance, screening, early detection, and diagnosis of cancer.
    2. Convey Scripts Announces Strategic Partnership with Centene to Unlock Increased Prescription Drug Personal savings
      Commencing in January 2024, Convey Scripts will handle pharmacy benefits for somewhere around 20 million Centene associates.
    3. Pediatric Snooze Application Huckleberry Shares Top rated Potty Coaching Difficulties and Preferences in 3,300-father or mother Survey
      Huckleberry has introduced a new potty education software to carry on supporting mother and father in the course of instances of changeover. In conjunction with the launch, they are unveiling the success of a survey that analyzes when mothers and fathers start potty teaching, well-known solutions used, and variances throughout gender, amid other matters.
    4. TEGAN AND SARA Foundation AND GLMA Launch LGBTQ+ Healthcare Listing
      The LGBTQ+ Healthcare Directory is a no cost, searchable database of doctors, clinical professionals and healthcare companies who are professional and delicate to the distinctive health and fitness requires of LGBTQ+ people in the United States and Canada.
    5. World’s Premier Veterinary Assembly & Expo Celebrates 40 Many years of Developments in Veterinary Drugs, Appears to be Forward to Next Wonderful Innovations
      The world-wide chief in continuing schooling for veterinary experts, the North American Veterinary Neighborhood (NAVC), will mark 4 many years of progressive veterinary  training at its 40th yearly Veterinary Assembly & Expo (VMX), Jan. 14 to 18, 2023 in Orlando, FL at the Orange County Convention Center.
    6. FINN Companions and OffScrip Wellness Join Forces on Multimedia Marketing campaign “Heartbreak in America’s Heartland – Disaster in Rural The usa”
      FINN and OffScrip Wellness will do the job to invite some others to lover in the work, championing a nationwide dialogue on the troubles rural Americans facial area, especially their struggles to entry education, wellbeing, technological know-how, customer goods, clear water and more. 
    7. ALANIS MORISSETTE, HALSEY, WEEZER, ONEREPUBLIC, Garbage AND TATE MCRAE HEADLINE AUDACY’S “WE CAN Survive” Live performance IN HOLLYWOOD
      The event lifted over $750,000 for the American Foundation for Suicide Avoidance (AFSP), the nation’s biggest suicide prevention business that presents people afflicted by suicide a nationwide group empowered by analysis, instruction and advocacy to consider motion towards this main lead to of dying.
    8. Regeneron Gets Six Months of U.S. Pediatric Exclusivity for EYLEA® (aflibercept) Injection
      The pediatric exclusivity dedication is dependent on facts from two Phase 3 trials – BUTTERFLEYE and FIREFLEYE – which were submitted in response to the FDA’s Prepared Ask for to appraise the use of EYLEA as a remedy for retinopathy of prematurity (ROP) in preterm infants.
    9. Make-A-Want and My 1st Looking through Club Companion to Give Youngsters a World of Prospects
      The national partnership will enable raise critical money to go on to grant lifestyle-modifying wishes for youngsters with vital illnesses – lots of of whom credit history their wish with supporting them triumph over their ailment.
    10. Verywell Intellect releases Psychedelics & Psychological Well being survey, finds nearly half of Us residents help legalization for psychological well being ailments as new treatment solutions deliver buzz
      Verywell Brain produced a new survey, Psychedelics & Psychological Wellness, examining Americans’ consciousness and views of psychedelics applied in the context of mental health and fitness procedure.
    11. Food and drug administration Denies Advertising and marketing of Logic’s Menthol E-Cigarette Products and solutions Pursuing Dedication They Do Not Satisfy Community Overall health Normal
      These are the to start with menthol e-cigarette goods to receive a promoting decision based on a complete scientific evaluate from the Fda.
    12. Eye Basic safety Guidelines to Retain Halloween From Obtaining Really Terrifying
      Halloween costumes are exciting and every person wishes to make a large “visual” impression, but in this article are tips from Safe and sound Eyes The usa to continue to keep you and your eyes safe and sound.

    Read through additional of the latest health and fitness-connected releases from PR Newswire and continue to be caught up on the top press releases by following @PRNhealth on Twitter.

    Helping Journalists Keep Up to Date on Industry News

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  • First Edition: Oct. 27, 2022

    First Edition: Oct. 27, 2022

    Today’s early morning highlights from the major news organizations.

    KHN:
    Employers Are Concerned About Covering Workers’ Mental Health Needs, Survey Finds 

    Almost three years after the covid-19 pandemic upended workplaces, mental health coverage remains a priority for employers, according to an annual employer survey fielded by KFF. Nearly half of surveyed large employers — those with at least 200 workers — reported that a growing share of their workers were using mental health services. Yet almost a third of that group said their health plan’s network didn’t have enough behavioral health care providers for employees to have timely access to the care they need. (Andrews, 10/27)

    KHN:
    Montana Backs Away From Innovative Hospital Payment Model. Other States Are Watching.

    Montana is signaling it might step away from an innovative way of setting the prices its public employee health plan pays hospitals for services, an approach that has saved the state millions of dollars and become a model for health plans nationwide. The plan gained national renown among employers and health care price reform advocates when, in 2016, it established maximum amounts the health plan would pay for all inpatient and outpatient services. Those amounts were pegged to Medicare reimbursement rates. The adoption of that model, known as reference-based pricing, has saved the state tens of millions of dollars. Taxpayers help fund the medical plan, which insures public employees and their families, for a total of about 28,800 people. (Houghton, 10/27)

    KHN:
    Readers And Tweeters Take Positions On Sleep Apnea Treatment 

    KHN gives readers a chance to comment on a recent batch of stories. (10/27)


    The Hill:
    Americans Die Younger In States With Conservative Policies: Study


    Americans die younger in states with more conservative policies, while states with more liberal policies are associated with lower mortality rates, according to a new study published Wednesday in the scientific journal PLOS One. Researchers analyzed mortality rates for all causes of death in all 50 states from 1999 to 2019 among adults aged 25 to 64. They compared that to state data on policy measures such as gun safety, labor, marijuana policy, economic taxes and tobacco taxes. (Dress, 10/26)


    FiercePharma:
    OTC Birth Control Pill Delayed As FDA Postpones Expert Meeting For Perrigo Drug


    The FDA has pushed back a decision date on a proposed over-the-counter switch of Perrigo’s prescription birth control drug Opill by 90 days, Perrigo said Wednesday. Perrigo had previously expected an approval in the first half of 2023, but the exact original FDA action date was never disclosed. Perrigo’s HRA Pharma applied for the Rx-to-OTC switch on July 11, and such reviews typically take 10 months. In addition to its decision delay, the FDA also postponed a planned joint meeting by its Nonprescription Drugs Advisory Committee and the Obstetrics, Reproductive and Urologic Drugs Advisory Committee to discuss Perrigo’s application. The conference was previously scheduled for Nov. 18. No new date has been set, Perrigo said. (Liu, 10/26)


    Axios:
    FDA Postpones Meeting To Review Over-The-Counter Birth Control Pills


    “Protection of women’s health is of high importance to FDA,” an FDA spokesperson told Axios. “The postponement does not indicate or affect any decision regarding the application,” the spokesperson said, and added that the agency “remains committed to a timely review of this application.” (Gonzalez, 10/26)


    AP:
    Abortion Providers Challenge Medicaid Ban In Pennsylvania 


    Abortion providers across Pennsylvania urged the state’s highest court on Wednesday to overturn a longtime ban on Medicaid funding for the procedure. Planned Parenthood and other providers say the 1982 law violates the state’s Equal Rights Amendment by treating women’s health care needs differently than those of men. (Dale, 10/26)


    Scientific American:
    These Drugs Could Restore A Period Before Pregnancy Is Confirmed


    Imagine this situation: A woman misses her period and worries she might be pregnant. She doesn’t want to be, so she schedules an appointment with a health care provider and tells them she wishes to get her period back. The provider prescribes her a course of “period pills.” She gets her period again, and that’s the end of it. Such a scenario is not purely hypothetical. Period pills are the same ones used in medication abortion—misoprostol alone or in combination with mifepristone—which could imply that menstrual regulation is just another name for early abortion. But the drugs might not be considered abortion medication because the patient never learns whether they were pregnant in the first place. (Lenharo, 10/26)


    ProPublica:
    Lawmakers And Public Health Advocates Call For Congress To Finally Ban Asbestos


    Days after ProPublica detailed dangerous working conditions at a chlorine plant that used asbestos until it closed last year, public health advocates and two U.S. lawmakers are renewing calls for Congress to ban the carcinogen. “American workers are dying from asbestos. It is way past time to end its use,” said Sen. Jeff Merkley, a Democrat from Oregon. “This ProPublica report confirms our worst fears: workers dealing with asbestos are often left vulnerable to this deadly, dangerous substance.” Merkley and Rep. Suzanne Bonamici, D-Ore., are sponsoring the Alan Reinstein Ban Asbestos Now Act, which would permanently ban the importing and use of asbestos. (Bedi and McGrory, 10/27)


    The Hill:
    Fetterman Stroke Sparks Debate Over What’s Seen As A Disability


    Advocates for people with disabilities have watched the debate over Pennsylvania Senate candidate John Fetterman’s (D) with interest, and say that regardless of his health, it raises questions about how people view those with disabilities.   “I think that most of us … conjure up an image of what it is to be disabled and oftentimes that is some sort of physical mobility disability,” said Emily Blum, executive director of Disability Lead. “That’s an image that a lot of us are very comfortable with because it’s visible.”  (Budryk and Daniels, 10/26)


    Stat:
    For Experts On Stroke, Fetterman-Oz Debate Is A Teachable Moment


    At a Senate debate Tuesday, the Pennsylvania Democrat John Fetterman, who is recovering from a stroke, at times stumbled over his words, jumbled his answers, and noticeably paused. In the political press, Fetterman’s performance was met with headlines about his “painful debate” and “struggles.” (Joseph, 10/26)


    AP:
    Herschel Walker Faces Abortion Allegation From 2nd Accuser 


    A woman came forward Wednesday to accuse Herschel Walker, the anti-abortion Republican running for U.S. Senate in Georgia, of encouraging and paying for her 1993 abortion — an accusation that came just weeks after a former girlfriend said he did the same for her in 2009. Walker dismissed the newest allegation as “foolishness” and “a lie,” similar to his vehement denials earlier this month of the abortion alleged to have happened 13 years ago. … “I also did not kill JFK,” Walker said in a statement later Wednesday. (Barrow and Dazio, 10/27)


    NPR:
    Republicans Recast Drug Debate As Issue Of Crime And Borders


    On a recent evening, Ryan Hampton stood in front of a crowd of people in Spokane, Wash., urging them to see drugs and addiction as a key issue in the midterm elections. “We see these overdose numbers hitting new historic highs,” Hampton said, referring to the 107,622 Americans who died after using illicit drugs last year. (Mann, 10/27)


    The New York Times:
    Most Hospitalized Monkeypox Patients In The U.S. Were H.I.V.-Positive 


    Nearly all Americans hospitalized for monkeypox infection had weakened immune systems, most often because of H.I.V. infection, the Centers for Disease Control and Prevention reported on Wednesday. Of 57 hospitalized patients described in the report, 82 percent had H.I.V. More than two-thirds of the patients were Black and nearly one-quarter were homeless, reflecting racial and economic inequities seen in the outbreak overall. (Mandavilli, 10/26)


    The Washington Post:
    Monkeypox Deaths In U.S. Hit 10; Danger Highest With Untreated HIV 


    Monkeypox is causing devastating outcomes for people with severely weakened immune systems, even as new cases continue to decline in the United States, according to a federal report released Wednesday. At least 10 people hospitalized with monkeypox have died. More than 28,000 cases of monkeypox have been reported since the U.S. outbreak began in May. While the vast majority recover within weeks, some patients with untreated HIV experienced especially dire consequences, such as losing function of their brain or spinal cord, eyes and lungs despite being given antiviral medication. (Sun and Nirappil, 10/26)


    ABC News:
    Some US Hospitals Report Beds Are Full Among Increase In Respiratory Infections In Children


    Some hospitals across the United States say their beds are full as cases of respiratory viruses continue to increase among children. According to the Centers for Disease Control and Prevention, infections due to respiratory syncytial virus, or RSV, have spiked by 69{fe463f59fb70c5c01486843be1d66c13e664ed3ae921464fa884afebcc0ffe6c} over the last four weeks from 4,667 to 7,917 and are appearing earlier than usual. (Kekatos, 10/27)


    The Hill:
    What To Know About RSV Symptoms And Transmission 


    Adults with RSV typically have symptoms of the common cold, but babies, young children and older adults who are infected with the virus can develop more serious illnesses like pneumonia. … RSV is primarily transmitted through contact with bodily fluids, and less commonly through the air or skin to skin contact. (Hou, 10/26)


    San Francisco Chronicle:
    BQ.1 And BQ.1.1 Strains Are Now CDC’s ‘Greatest Concern’


    U.S. health officials are watching the BQ.1 and BQ.1.1 COVID subvariants “very carefully,” said the director of the Centers for Disease Control and Prevention. Speaking at a virtual event hosted by the University of Virginia School of Medicine on Wednesday, Dr. Rochelle Walensky described the emerging omicron descendents as “our greatest concern right now, both for the number of mutations, but also for the impact and the phenotype that we are worried that they may imply.” (Vaziri, Buchmann and Ravani, 10/26)


    The Washington Post:
    Still Afraid Of Covid: The People Who Are Still Isolating And Masking 


    [Many] Americans are still going very far out of their way to avoid the virus. They don’t dine indoors at restaurants. They continue to practice social distancing. They wear highly protective masks if they must visit a doctor or stop at a pharmacy. Some are home-schooling their kids. Others are refusing to return to the office. They populate the dozens of social media groups whose members identify as “Still COVIDing.” Many of them would like the unmasked masses to know that this isn’t easy and that it’s only gotten harder. (McCarthy, 10/26)


    The Boston Globe:
    Moderna Nears US Deal To Develop Shots For Ebola, Other Biological Threats


    Moderna declined to comment on the pending contract, and financial terms were not available. The company “continues to explore potential Ebola vaccines, based on earlier research conducted with academic partners,” a spokesperson said in an email. Moderna has said earlier that it’s committed to advancing clinical studies of 15 vaccine programs targeting emerging or neglected infectious diseases by 2025. (Muller and Griffin, 10/26)


    Bloomberg:
    Some States Push To Limit Health Coverage For Poor Children


    About 4 million children in the US have no health insurance. That’s about 5{fe463f59fb70c5c01486843be1d66c13e664ed3ae921464fa884afebcc0ffe6c} of Americans 18 and younger. The number of uninsured kids declined for years, until it began edging up at the end of the 2010s. New research blames that reversal on state policies that made it harder to get safety-net coverage. That’s likely to have useful lessons for the year ahead. … The debate over who should be permitted to get Medicaid, the safety-net insurance for low-income families, has largely been on hold since the Covid-19 pandemic. (Tozzi, 10/26)


    Politico:
    Why Medicaid Is Blocking Patient Home Monitoring


    Many state Medicaid offices are stymieing the use of remote patient care, refusing coverage for low-income residents who suffer from chronic diseases at higher rates than Americans with private insurance, POLITICO’s Ruth Reader reports. Even as successive administrations have touted remote patient monitoring programs as a key to improving Americans’ health and reducing unnecessary government spending, many states have declined to pay for them. (Mahr, Payne, Banco and Leonard, 10/26)


    Fierce Healthcare:
    CMS To Restrict Medicare Advantage TV Ads Amid High Complaints


    Starting next year, insurers will not be able to air any television ads for Medicare Advantage (MA) plans before getting approval from federal regulators. The new requirement is part of a larger effort by the Centers for Medicare & Medicaid Services (CMS) to address concerns in MA marketing practices. The new effort, announced in a memo released Oct. 19, comes as a Senate panel is also investigating how MA plans reach customers. (King, 10/26)


    AP:
    NC Nurse Charged With Murder In Deaths Of 2 Patients 


    A former nurse at a North Carolina hospital has been charged in the deaths of two patients after officials said he injected them with lethal doses of insulin. Forsyth County District Attorney Jim O’Neill announced at a news conference Tuesday that Johnathan Howard Hayes, a registered nurse, was charged with two counts of murder and one count of attempted murder, news outlets reported. Hayes worked at Atrium Health Wake Forest Baptist Medical Center in Winston-Salem. (10/26)


    The Washington Post:
    Watching TV Could Increase Seniors’ Risk Of Dementia, Study Says 


    How older adults spend their sedentary time — what they do while sitting — makes a difference in their chances of developing dementia, according to research published in the journal Proceedings of the National Academy of Sciences. It found that those whose time sitting was primarily spent watching television had a 24 percent increased risk for dementia, whereas those who spent that time on a computer had a 15 percent reduced risk for dementia. The researchers explained that TV watching is cognitively passive, meaning little thinking is required, while computer use is cognitively active, meaning it (like reading) is more intellectually stimulating. (Searing, 10/25)


    Politico:
    Jan. 6 Rioter Gets Probation Not Prison After Judge Finds Autism Played A Role


    A Jan. 6 rioter who wielded a hatchet and smashed two windows with a flagpole will serve no jail time, a federal judge ruled Wednesday, finding that Asperger’s syndrome made him susceptible to the influence of the mob. Nicholas Rodean of Frederick, Md., attempted to address U.S. District Court Judge Trevor McFadden Wednesday and visibly struggled to complete thoughts and sentences while explaining and apologizing for his Jan. 6 conduct. At one point, he clutched his head in frustration. McFadden ultimately chose to sentence Rodean to 240 days of home confinement. But he said he was convinced that Rodean’s severe mental illness significantly mitigated “the blameworthiness of your conduct.” (Cheney, 10/26)


    Bloomberg:
    TikTok Found Not Liable For Child Dying In ‘Blackout Challenge’ 


    TikTok isn’t liable for the death of a 10-year-old girl who watched a so-called Blackout Challenge video that encouraged people to choke themselves, a judge ruled.US District Judge Paul Diamond in Philadelphia said a federal law shielded the video-sharing platform from liability in the death of Nylah Anderson, even if the company’s app recommended the video to her. (Burnson, 10/26)


    This is part of the KHN Morning Briefing, a summary of health policy coverage from major news organizations. Sign up for an email subscription.

  • First Edition: Oct. 27, 2022

    Wednesday, October 26, 2022 | Kaiser Health News

    Study Will Analyze If Psychedelic Can Aid In Quitting Cigarette smoking

    The Countrywide Institutes of Health grant to Johns Hopkins College marks the first time in 50 many years that a federal grant has absent to examine a psychedelic drug as a cure, NBC Information states. Meanwhile, the well being treatment impact of words and phrases and labels similar to habit is talked over, amid other information.


    NBC Information:
    NIH-Funded Psychedelic Trial Will Examine No matter whether Hallucinogen Can Assist People who smoke Give up


    The analyze, a randomized controlled trial predicted to start later on this calendar year, will look into no matter whether psilocybin, the psychedelic compound identified in “magic mushrooms,” can assistance men and women give up smoking tobacco. Hopkins researchers will guide the trial, which will be completed in collaboration with researchers at NYU Langone Wellbeing and the College of Alabama at Birmingham. (Syal, 10/26)

    More on drug use and addiction —

    In other health and fitness and wellness news —


    AP:
    Snooze Apnea Unit Recall Drags On, Stoking Stress


    A enormous remember of tens of millions of sleep apnea devices has stoked anger and disappointment between sufferers, and U.S. officials are weighing unparalleled legal action to velocity a alternative work that is established to drag into next year. … Philips to begin with estimated it could maintenance or change the models in a calendar year. But with the recall expanding to much more than 5 million equipment around the globe, the Dutch firm now states the exertion will stretch into 2023. That’s remaining many patients to choose involving employing a most likely dangerous device or making an attempt risky solutions. (Perrone, 10/25)


    United states of america Nowadays:
    Local weather Change Is Worsening Wellbeing And Disparities: What Can Be Carried out?


    Researchers throughout the world collaborate to research climate and wellness in an annual report, the Lancet professional medical journals’ “countdown” on wellbeing and weather transform. In this year’s U.S. part of the report, released Tuesday, experts break down investigate on the overall health impacts of a warming weather and define coverage suggestions, focusing on wellbeing fairness. (Hassanein, 10/25)

  • Some with disabilities fear risky pregnancies

    Some with disabilities fear risky pregnancies

    By Clarissa Donnelly-DeRoven

    In her regular life, Asheville resident Tiffany Grzankowski lives with a lot of pain. She has Ehlers-Danlos Syndrome, a cluster of genetic disorders that impacts connective tissue. For Grzankowski, in addition to chronic pain, EDS means her blood pressure and heart rate rise and fall without much warning, she breaks bones easily, and she feels nauseated often due to a paralyzed stomach.

    All those symptoms worsened when she became pregnant. 

    “I was throwing up every day for the entire pregnancy,” she said. “If I stood up for too long, like, say I was grocery shopping or something, I’d have to use one of the scooters because I would faint.”

    She asked her doctors for advice, but they didn’t have much. 

    “They were just like, oh, you know, drink some stuff with salt in it,” she said. “I was left to figure out everything on my own.”

    It’s an experience “that’s unfortunately very common,” explained Willie Horner-Johnson, a professor of public health at Oregon Health and Science University who co-authored a recent study examining health disparities for pregnant people with disabilities. 

    Horner-Johnson and her team found that nearly 20 percent of all people who give birth in the U.S. identify as having a disability. 

    “It’s pretty consistent with the proportion of disability in the population,” she explained, but it’s a massive increase from previous estimates. 

    Earlier studies suggested that between just 1 and 6 percent of people who gave birth had a disability. Those numbers were gathered by analyzing medical claims data and diagnosis codes. But this new study analyzed responses from the National Survey of Family Growth, which thanks to a provision in the Affordable Care Act, now collects data on health disparities.

    Horner-Johnson’s study also found that compared to their non-disabled peers, disabled people were more likely during their pregnancy to be younger than 20, un-partnered, without a college degree, and to have lower incomes. They also were more likely to smoke during pregnancy, experience delays starting prenatal care, have a preterm birth, and have children born with lower birth weights.  

    “The disparities that we’ve found were actually pretty consistent with prior research that was based on diagnosis codes,” Horner-Johnson said. “But now we know that those disparities are much more widespread than it appeared to be from those studies. 

    “It’s really clear that births to people with disabilities are not that rare,” she said.

    A history of restricted reproductive rights

    Those well-documented disparities, experts say, are tied to this country’s long legacy of eugenics practices, which often deprived disabled people of their reproductive rights.

    “Reproductive rights of people with disabilities have not been a priority — I think that’s the most gentle way to say it,” Horner-Johnson said. “Generally, if people were thinking about parenting and people with disabilities at all, it was from a prevention point of view.”

    Those narratives have led people with disabilities to be thought of as desexualized, incapable of parenting, “and so therefore unlikely to carry a pregnancy to term,” said Corye Dunn, the director of public policy at Disability Rights North Carolina. 

    That was certainly Grzankowski’s experience. She said during her second pregnancy, once she learned her daughter would be born with Down Syndrome, multiple doctors pressured her to have an abortion. 

    “They said that I had no business being a disabled, single woman having a disabled child,” she said. “And it wasn’t just one doctor, it was like two or three doctors.” She said doctors lectured her about how having a child with a disability would be a lot of work, and she shouldn’t assume that she’ll be able to give her child to her parents if things got too tough. 

    “I’m like, ‘would you be saying this stuff if I had no health issues? I don’t understand why me being disabled has anything to do with my ability to care for a child,’” she said. “I’m not against abortion at all, but it’s not in the cards for me. I’m having this baby, no matter what. And no one’s gonna stop me. And I remember the doctor said something like, basically, the decision I was making was a dumb decision.”

    Lack of education

    Because clinicians and other caregivers are just as likely to have the same biases about people with disabilities as the general public, the kind of reproductive education disabled people receive can be clouded and incomplete.

    “We don’t do a great job of teaching our clinicians about the humanity of people with disabilities,” Dunn said, “So it’s not surprising that folks don’t get prenatal care until later if they have a cognitive disability. It’s not surprising that people with multiple disabling conditions engage in smoking or another contra-indicated activity — not because they’re bad people or don’t want to do well for their potential child, but because they don’t get the information.”

    Also feeding into this is the reality that there’s very few requirements in medical school that teach clinicians how to give thoughtful and competent health care to people with disabilities. 

    “A lot of medical programs have none. Maybe there’s an hour-long presentation somewhere,”  Horner-Johnson said. “It’s really piecemeal. There aren’t accreditation requirements. There’s no standard requirement that a certain amount of disability-related instruction be included. It’s just as somebody with an interest has the capacity to create something at one particular center. There are a few of those that are scattered around, but nothing systematic.”

    Moreover, medicine has historically treated disability as a “negative health outcome,” not a demographic group, Horner-Johnson explained. Clinicians might feel more comfortable trying to “fix” the disability, rather than learning how somebody lives with, and around their condition and  attending to their other medical needs.

    A shifted burden

    This leads many patients to feel as though their clinician isn’t actually the one with expertise. Rather, they feel that the pressure to explain their disability and how it’s impacting their pregnancy falls squarely on their shoulders. 

    “It shouldn’t be a patient’s responsibility,” Dunn said, “And yet, every single patient with a disability knows that if they don’t take some ownership of that they are at risk because providers don’t do it well enough.”

    For Grzankowski, not having a supportive or knowledgeable medical team made her pregnancy — which was already an exhausting physical experience — into an emotionally stressful period as well.

    “When I think about everything that we went through, I feel grateful that I knew what to do,” Grzankowski said. But, she added, not everyone can do that. “So, there needs to be a lot of changes across the board for pregnant women.”

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  • Social workers: An integral part of the healthcare team

    Social workers: An integral part of the healthcare team

    Social workers: An integral part of the healthcare team

    Social work has traditionally been treated as a separate function from healthcare. Degrees in social work are taught in different departments, and often in different schools than degrees in healthcare. Yet, the two sectors are inextricably linked. In some areas, healthcare is evolving to break down the barriers and develop a more integrated approach to caring for patients.

    As healthcare gradually makes the transition from fee-for-service reimbursement to value-based payment systems, there is a greater incentive to deliver effective care for better patient outcomes.

    Social workers have a key role to play in integrated care teams. They are now being hired in greater numbers to support primary care teams due to their skills in working to address both behavioral health problems and physical health problems which are linked to behavioral dependencies, such as those relating to diabetes treatment.

    Social workers are skilled at addressing behavioral health issues, coordinating multifaceted care plans, providing education on health and wellness and helping families to navigate the complexities of health systems. They work with many different types of diagnoses, and with individuals and families from a range of populations, including pediatrics, adolescents and adults, often supporting the most vulnerable sections of society.

    The impact of involving social workers in primary care teams is particularly significant when it comes to mental health problems and related physical problems. Social workers have expertise in providing support for patients to access specialized services, such as counselling, care management and skill-building services. Facilitating access to these types of services has been shown to improve behavioral health outcomes for patients with a wide range of needs and across different age populations.

    A 10-year study carried out by Intermountain Healthcare found that integrated care in a primary care setting could provide improved patient outcomes, with fewer hospital admissions, and could be delivered at lower cost. According to the study, where there was an integrated primary care team, a self-care plan was implemented in 48.4{fe463f59fb70c5c01486843be1d66c13e664ed3ae921464fa884afebcc0ffe6c} of cases, compared with just 8.6{fe463f59fb70c5c01486843be1d66c13e664ed3ae921464fa884afebcc0ffe6c} of cases where traditional care was provided.

    The demand for social workers is growing rapidly. According to the Bureau of Labor Statistics, there were over 708,100 social work jobs in the US as at 2021. By 2031, the number of roles is expected to have grown by 9{fe463f59fb70c5c01486843be1d66c13e664ed3ae921464fa884afebcc0ffe6c}, leading to plenty of opportunities for career progression in the sector.

    Studying for a master’s in social work online gives you the flexibility to learn at your own pace and at times to suit your work schedule and any other commitments you have, with both full-time and part-time programs to choose from. Components include Human Dynamics in the Social Context, Policy Analysis and Strategies for Change, and Applied Critical Thinking. The online MSW degree at Spalding University is accredited by the Council on Social Work Education and will aid applicants in landing a job in social work.

    In order to make the best use of the sometimes-undervalued contribution which social workers have to offer in primary care, it is important that social workers are supported within health care teams and are given any training required as well as tools to maintain their own health. This will enable social workers to maximize their potential and deliver enhanced patient care and effective health care outcomes for all.